I haven’t told my parents that my health is being investigated and that Multiple Sclerosis has been mentioned.  I don’t want to worry them, especially as it is the Christmas Season.  I do plan to tell them after Christmas before my appointment with the neurologist.  Every time I am with them (and I am with them a lot) I feel like I am lying to them by not telling them and I feel ashamed.  My heart is broken for them because I know theirs will break a little, maybe even a lot and I don’t want to be the reason for that.  I want them to be carefree for the rest of their days and I know this worry will be a burden on them.  I really don’t want to be a burden.  All this before I am even diagnosed.

17 thoughts on “Is it a lie?

  1. I know how hard it is when you hear the words Multiple Sclerosis and I understand you not wanting to upset your parents, but you really need their support right now. It is not an easy thing to process and now more than ever you need people you can talk to about this. I was diagnosed 16 years ago and even today I will have times when I need a little extra support and encouragement. If there is anything I can do for you please do not hesitate to reach out to me. My email address is alyssabowman81@gmail.com. You do not have to fight this battle alone!

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      1. It was pretty shocking to hear and being only 19 I couldn’t process it completely! But, I am making it! I never knew that blogging could be so helpful but it has been a great thing for me! I hope it will help you as well!

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      2. It is an easy outlet. I can’t really speak about it yet but I can write about it- my husband has found things out by reading my blog- I will get better about speaking it. I have always been better communicating through writing!

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      3. My husband’s sister has MS so we know a bit about it. But she has only been diagnosed within the last 2 years and she keeps a brave face on it. She doesn’t allow us to see how bad it gets. She is protecting us. She doesn’t know about me yet. My husband is supportive and also hopeful that it isn’t MS but with these symptoms it has to be something, right? I guess until we have confirmation he is thinking I don’t have MS. Whereas I am preparing myself.

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      4. She is 41. I’m 39. I have numbness and pain in my hands, feet, face and somewhere private. I am extremely tired. I have pain in my left arm. Two weeks ago my face burned all day. I never had that before. Also bladder control issues. Anxiety. Today I discovered that mixing up letters and numbers is also very common with MS. I’ve had this problem for about a year now. I have blurred vision too. There’s prob more I’m missing out.

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      5. I understand the numbness issues in random areas, some being a little more personal than others. Did you already have an MRI? All those symptoms do sound pretty familiar to me but maybe it is something besides MS. In all honesty, there was a time I thought MS was a death sentence, but I was young. It is way more manageable now with medications. You already know I was diagnosed 16 years ago, I am 36 now. Seems like a lifetime ago. Do you live in the states or another country? I ask because it seems treatment in between the states and other countries are different. I mean there are the same meds, but doctors treat different.

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  2. I live in Ireland. I haven’t had an mri yet. My first appointment with neurologist is 15th January. That was the first available appointment. I’ve been reading the wahls protocol. What else could it be? Maybe MS is best case scenario? Do the medications you take have horrible side effects?

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  3. It is so difficult hearing those words. But make sure you don’t isolate yourself. Obviously do what you feel is best for you but make sure you don’t leave yourself with no one to speak to about it!
    Can’t wait to read more of your stuff!

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